Welcome

Thank you for thinking of Ian and visiting our site. Our goal is to preserve Ian's eyesight while raising awareness about SJS. But we need your help. In addition to financial donations, you can help by supporting our events or choosing our recommended products and services. 100% of funds raised are used for Ian's care.

Ian's Story

At only three years old Ian Milne suffered the most severe form of Stevens Johnson Syndrome (SJS). 87% of his body blistered, burned and lost skin. He endured unimaginable pain and was treated as a severe burn victim. But the damage to his eyes was permanent. For 3 years, Ian was so sensitive to light that he lived in total darkness. For the past 8 years he has endured excruciating eye pain 24/7, requiring eye drops every 20 minutes and the fitting of a Prosthetic Scleral Lens for pain relief. The ongoing ocular surface disease means that, in order to preserve his sight   read more...